The Prader Willi Syndrome Association Ireland (PWSAI) originated in the late 1980s as a support group for people with PWS and their families in Ireland. Some of the founding members of the original PWS support group continue to serve on the PWSAI committee today.
In 2003 the support group formalized its status and, under the expert
guidance of Maria Meyler, Company Secretary, registered with the Company Registrations Office as a company limited by guarantee, initially with a committee of 7 members.
Chairperson
Don Tallon
Company Secretary
Maria Meyler
Treasurer and Information Officer
Lena Lawlor
Committee Members
Elaine Doolin, Donnchadh Clancy, Anne Grassick, Anne O’Neill,
Paul Wright, Mary Zerbe
The PWSAI has always benefited from the guidance and help of the PWSA UK, who have consistently included Irish PWS sufferers, their families and the Irish PWS support group in their activities. On several occasions we have had guest speakers at our annual conference from the PWSA UK, which underlines the special relationship which has been maintained down through the years with that organisation. The PWSAI cherishes this special relationship with the PWSA UK.
Another important milestone was also reached in 2003 as we had the opening of Graifin House – a residential home for adults with PWSA located in Sandyford, Dublin. RehabCare have provided an excellent support and management service to make this happen.
Throughout the years, we have also received great support from certain hospitals and medical teams, especially Professor Hillary Hoey and all at the Paediatric Endriconology Department at The National Children’s Hospital, Tallaght.
The association relies for funding on voluntary contributions / donations and
on fund raising events. If you would like to make a contribution / donation to the
PWSAI please contact:
Ann Grassick
Administrator PWSAI
Carmichael Centre, Carmichael House
North Brunswick Street, Dublin 7
telephone: 087 935 4914
email: info@pwsai.ie
Charitable Status Reference
CHY 15171
Tax Reference
6384058G
If you wish to talk to Lena Lawlor, PWSAI Treasurer and Information Officer,
please telephone: 087 983 3868
